ranman
Junior Member
Posts: 66
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Post by ranman on Sept 12, 2006 23:46:08 GMT -5
Hello, My name is Randy and I'm 50 yrs old, was dx'd with UC in 1979 and my current medication is "Asasol" (sold only in Canada but in the states it's called Asacol I think.
I've been in remission on and off for 28 yrs. When I get flare ups (usually every 2 years) they last about 2 weeks.
I also have epilepsy, (Doctors think that UC and EP are connected but can't prove it) and both are stress related. The Asasol I take for my UC paint a protective coating on the lining of my bowels making it that much more difficult for my EP meds. to penetrate and enter the blood stream SO managing all my meds. is a balancing act. IE: if I have a flare up, my GI wants to double my doseage ~ this blocks the EP meds from entering the blood stream and so if I double up on my EP meds to componsate, they go toxic and everybody thinks I'm drunk.
I have tons more "life experiences" dealing with UC and EP but I don't want to bore you.
Randy
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ranman
Junior Member
Posts: 66
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Post by ranman on Sept 13, 2006 23:46:39 GMT -5
Some symptoms: first sign is mucus in the stools ~ then blood in the stools. 2) Feeling that you always have to empty your bowels ~ sometimes every 15 mins or every hour (depending on the severity) 3) When you go to the washroom, all you get is Lots of gas accompanied with blood and/or mucus. 4) bloating of the stomach. 5) Usually flares up AFTER a stressful event or if you've been eating acidy foods or caffine or dairy prods.
But I find it's very well controlled with medication. I usually have a flare up every 2 yrs. Very tricky to control though with my Epilepsy, like walking a tight rope. My blood levels have to be monitored weekly so I can maintain the theraputic level for my AED's but not mess up my UC med count. IE: My UC meds paint a protective coating on the bowel and stomach walls and as a result, the AED's can't motabilize properly ~ then if you increase yor AED's, they could become toxic in your system or if you have a flare up, you have to increase your doseage of the UC meds (mine is Asasol) then it's that much harder for the AED's to penetrate the stomach and bowel so if you increase your doseage of AED's, they can become toxic and you will act like a drunk or stoner.
What I have found is that a flare up or EP seizure will happen AFTER a stressful event like I said above b/c during a relaxed time, your body's natural defenses are down.
Since I have EP and UC, my neurologist says it's very difficult to control. I'm currently seeing Dr. A. Upton, proffessor of Neurology, McMaster Univerity Medical Centre, He's lectured on my case and it has been documented in the 1986 Medical Journal.
Randy
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ranman
Junior Member
Posts: 66
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Post by ranman on Oct 7, 2006 12:37:55 GMT -5
Hi everyone, I just wanted to know what meds you're on for your UC and is it keeping it under control?
Randy
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